The CRPS UK Clinical & Research Network was established in 2006 and is a research collaboration between a number of UK NHS trusts and academic institutions with an interest in Complex Regional Pain Syndrome. A primary aim of the CRPS Network is to raise awareness and understanding of Complex Regional Pain Syndrome amongst health professionals, patients and the general public. We maintain a national CRPS Registry database as part of a long-term research study.
2018 was the 10th anniversary year of the CRPS Registry, which now holds 572 records and has contributed to eight different national and international research studies. We produced a special anniversary edition newsletter, which can be downloaded here
2018 also saw the launch of the 2nd edition of the UK guidelines for diagnosis, referral and management of CRPS in adults in primary and secondary care. Originally published in 2012, the revised guidelines contain updated information and recommendations from a UK panel of experts representing a variety of healthcare specialties and professions. A full copy of the 2nd edition of the CRPS guidelines is available here
A new leaflet is available for patients who are living with CRPS and would benefit from learning to self-manage their condition. This has been produced by the charity Pain Concern, in partnership with the CRPS Network and the patient-led charity CRPS UK. Please click here to download a copy.
Forthcoming Events ..............
We often hold various events throughout the year including seminars, study days and conferences - please check back regularly for new events.
Two Network members have been involved as professional advisors to a theatre project called "The Shape of the Pain", which has been developed and led by a person with CRPS. The resulting play has been performed at the Edinburgh Fringe, along with a 2019 short UK tour. Congratulations to everyone who has worked so hard to see this project to fruition.
(Site updated 09/05/2019)