The CRPS UK Clinical & Research Network was established in 2006 and is a research collaboration between a number of UK NHS trusts and academic institutions with an interest in Complex Regional Pain Syndrome. A primary aim of the CRPS Network is to raise awareness and understanding of Complex Regional Pain Syndrome amongst health professionals, patients and the general public. We maintain a national CRPS Registry database as part of a long-term research study.
2018 was the 10th anniversary year of the CRPS Registry, which now holds 560 records and has contributed to seven different national and international research studies. We produced a special anniversary edition newsletter, which can be downloaded here
2018 also saw the launch of the 2nd edition of the UK guidelines for diagnosis, referral and management of CRPS in adults in primary and secondary care. Originally published in 2012, the revised guidelines contain updated information and recommendations from a UK panel of experts representing a variety of healthcare specialties and professions. A full copy of the 2nd edition of the CRPS guidelines is available here
Forthcoming Events ..............
We often hold various events throughout the year including seminars, study days and conferences - please check back regularly for new events.
Two Network members have been involved as professional advisors to a theatre project, which has been developed and led by a person with CRPS. The resulting play has been performed at the Edinburgh Fringe and is now commencing a short UK tour (details below). Congratulations to everyone who has worked so hard to see this project to fruition.
China Plate presents: The Shape of the Pain - developed by Rachel Bagshaw and Chris Thorpe.
Commissioned by Battersea Arts Centre and New Wolsey Theatre, Ipswich. Funded by the Wellcome Trust and supported using public funds from The National Lottery through Arts Council England.
"A Fringe First award-winning production about love, perception and constant, relentless pain. This tour de force performance from Hannah McPake sees one woman attempt to articulate her experience of pain. Physical pain with no apparent cause. Also, she's met someone, and they really want to make this work". The production combines video, sounds and words. All performances are captioned and audio described.
19th - 23rd March 2019: Wilton's Music Hall, London
25th March: Edge Hill University, Ormskirk, Lancashire
27th - 30th March: Bristol Old Vic
3rd April: Cambridge Junction
5th April: Northern Stage, Newcastle
For further information and to book tickets, please visit the China Plate Theatre website - http://www.chinaplatetheatre.com/shape-pain
(Site updated 08/03/2019)