An International Clinical Research Registry for CRPS
We are currently working to develop the first international clinical research registry for people with CRPS.
The findings from the COMPACT-Q and COMPACT-C studies have enable the final combined set of patient-reported and clinical outcome measures to be agreed. We can now include these within the international registry and look to recommend them for use in all future clinical studies. The future registry will allow researchers to access a large and consistent dataset. Research that uses registry data could increase our understanding of CRPS, evaluate the effectiveness of treatments, and improve health outcomes for people who are living with this condition.
We anticipate that the new international registry will open for recruitment in 2022, at which point researchers from across the globe will be invited to contribute to this unique and exciting long-term study.
If you are interested in potentially contributing to the international registry in the future, please email us at email@example.com