Other publications by CRPS Network members 2021-2022
Many of our Network members are experienced researchers in the field of CRPS and chronic pain. Not all of their publications are directly related to Registry studies, but are still very relevant to our work. A key selection are listed below.
Abstracts (overviews) of all research papers can be accessed using the following links, but please note that some will require an active subscription to the relevant journal in order to access the full publication.
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Complex Regional Pain Syndrome: Practical Diagnostic and Treatment Guidelines, 5th Edition - published in Pain Medicine, June 2022. These guidelines are intended to serve as an aid to the informed practitioner. Detailed sections are provided as a guide and informational source not only to the “expert” in CRPS therapy but also the primary practitioner who is interested. Topics covered include diagnosis, interdisciplinary management, pharmacotherapy, psychological interventions, and interventional therapies.
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Access to chronic pain services for adults from Minority Ethnic groups in the United Kingdom: A scoping review protocol - published in Musculoskeletal Care, March 2022. Chronic pain services in the UK are required to provide services which meet the diverse needs of patients, but little is known about the access and use of these services by minority ethnic groups. This scoping review will be among the first to explore whether adults who access secondary and tertiary chronic pain services are representative of the UK minority ethnic population.
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The STAR care pathway for patients with pain at 3 months after total knee replacement: a multicentre, pragmatic, randomised, controlled trial - published in The Lancet Rheumatology, March 2022. Approximately 20% of people experience chronic pain after total knee replacement, but effective treatments are not available. Researchers aimed to evaluate the clinical effectiveness and cost-effectiveness of a new care pathway for chronic pain after total knee replacement. This involved conducting a randomised controlled trial at eight NHS hospitals across the UK.
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Pain Assessment for Individuals with Advanced Dementia in Care Homes: A Systematic Review - published in Geriatrics, October 2021. Pain is prevalent in older people, especially in those with advanced dementia who have communication impairments. Although pain is recognised to be present in this population, it is often under-assessed and ineffectively managed. The assessment of pain in advanced dementia is extremely challenging and complex, particularly in institutional settings such as care homes. This study systematically reviews the literature to examine and characterise the evidence for the use of pain assessment tools in care homes with individuals living with advanced dementia.
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The Valencia consensus-based adaptation of the IASP complex regional pain syndrome diagnostic criteria - published in PAIN, September 2021. The new IASP diagnostic criteria for complex regional pain syndrome, known as “the Budapest Criteria" are now in common use internationally. The IASP CRPS Special Interest Group convened a workshop in Valencia in September 2019 to review perceived ambiguities in the diagnostic text and issues identified in applying these criteria in both the research and clinical contexts. After this review, workshop attendees discussed and reached a consensus regarding adaptations to the diagnostic taxonomy text. This process resulted in pragmatic updates to CRPS assessment instructions and the associated text in the IASP taxonomy. The wording of the diagnostic criteria themselves was not altered so as to avoid invalidating the criteria.
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Perspectives on pain registries - published in PAIN, August 2021 (previously published online in February 2021). A registry is a standardised approached to collection of data related to a specified patient population that serves predetermined scientific, clinical, or policy purposes. They allow examining approaches to management, which would not be feasible by a trial or where there was no trial data available. Aspects of their design, analysis, and use in the field of pain are discussed by the authors.
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The structural and functional connectivity neural underpinnings of body image - published online in Human Brain Mapping, May 2021. How we perceive our bodies is fundamental to our self-consciousness and our experience in the world. Body schema (a subjective experience of the position of a limb in space) has been extensively studied, but there is no evidence of the brain structure and network dynamics underpinning body image (the subject experience of the shape and size of the limb). Researchers performed a multisensory finger-stretch illusion. This study provides the first evidence for the extrastriate body area (EBA), a multisensory brain area, as the structural and functional neural substrate for body shape and size.
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Peoples' experiences of painful diabetic neuropathy: a qualitative interview study - published online in Pain and Rehabilitation, February 2021. Painful diabetic neuropathy (PDN) is a common complication of diabetes. This study explored the experience and impact of living with the condition, through the use of semi-structured interviews. Findings showed that people with PDN experience a wider range of impacts than those previously reported in research literature.
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What are the holistic experiences of adults living long-term with the consequences of cancer and its treatment? A qualitative evidence synthesis - published in the European Journal of Oncology Nursing, February 2021 (previously published online in November 2020). The number of people living with and beyond cancer is increasing; a significant number of these people will experience the long-term and late effects of cancer and its treatment. Research into this group has been identified as a priority to better understand healthcare needs. This review identified and synthesised qualitative research data relating to the lived experience of the consequences of cancer and its treatment.
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Peoples' experiences of painful diabetic neuropathy: are pain management programmes appropriate? - published online in the British Journal of Pain, January 2021. This study aimed to explore strategies used by participants to manage the impacts of painful diabetic neuropathy. It also sought their perspectives on whether strategies from pain management programmes could help with management of the condition.
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Altered visuomotor integration in complex regional pain syndrome - published in Behavioural Brain Research, January 2021 (previously published online in September 2020). During self-guided movements, we optimise performance by combining sensory and self-motion cues optimally, based on their reliability. Discrepancies between such cues and problems in combining them are suggested to underlie some pain conditions. Researchers examined whether participants with CRPS show differences in sensorimotor integration compared to controls.
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Management of hemiplegic shoulder pain: A UK-wide online survey of physiotherapy and occupational therapy practice - published in Physiotherapy Research International, January 2021 (previously published online in August 2020). Hemiplegic shoulder pain is one of the four most common medical complications after a person has had a stroke. The purpose of this study was to explore how therapists assess, diagnose and manage post-stroke shoulder pain.
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